Preface |
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iii | |
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xiii | |
Summary |
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xv | |
Acknowledgments |
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xxi | |
Acronyms |
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xxv | |
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1 | (12) |
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Background on the National Bioethics Advisory Commission |
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1 | (1) |
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2 | (3) |
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Response to NBAC's Reports and Recommendations |
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5 | (5) |
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8 | (1) |
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Response from Professional Societies, Organizations, and Foundations |
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9 | (1) |
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10 | (1) |
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Organization of This Report |
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10 | (3) |
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13 | (8) |
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Media Reports That Mention NBAC |
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13 | (4) |
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Publications About NBAC in the Academic Literature |
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17 | (4) |
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Response to the Cloning Human Beings Report |
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21 | (22) |
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22 | (8) |
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Response from the President of the United States |
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23 | (2) |
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25 | (3) |
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Response from the Department of Energy |
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28 | (1) |
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Response from the Food and Drug Administration |
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29 | (1) |
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Response from State Government (New Jersey) |
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30 | (1) |
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Response from Professional Societies, Organizations, and Foundations |
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30 | (7) |
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Response from the American Association for the Advancement of Science |
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31 | (1) |
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Response from the American Medical Association |
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32 | (1) |
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Response from the American Society for Cell Biology |
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33 | (1) |
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Response from the American Society for Investigative Pathology |
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33 | (1) |
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Response from the Association of American Medical Colleges |
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33 | (1) |
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Response from the Biotechnology Industry Organization |
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34 | (2) |
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Response from the Federation of American Societies for Experimental Biology |
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36 | (1) |
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Response from The Pew Charitable Trusts |
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36 | (1) |
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Response from the United States Conference of Catholic Bishops |
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37 | (1) |
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37 | (6) |
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38 | (2) |
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Response from the United Kingdom |
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40 | (1) |
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Response from the United Nations Educational, Scientific and Cultural Organization |
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41 | (2) |
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Response to the Research Involving Persons with Mental Disorders that May Affect Decisionmaking Capacity Report |
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43 | (14) |
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44 | (9) |
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Response from the President of the United States |
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45 | (1) |
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Response from Congress (Congressional Testimony) |
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45 | (1) |
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Response from the Department of Health and Human Services |
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46 | (1) |
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Response from the Centers for Disease Control and Prevention (NIOSH) |
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47 | (1) |
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Response from the National Institutes of Health |
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47 | (5) |
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Response from State Government |
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52 | (1) |
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Response from Professional Societies, Organizations, and Foundations |
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53 | (2) |
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Response from the Alzheimer's Association |
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54 | (1) |
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Response from the American Academy of Neurology and American Neurological Association |
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54 | (1) |
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Response from the Association of American Medical Colleges |
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55 | (1) |
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55 | (2) |
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Response to the Research Involving Human Biological Materials: Ethical Issues and Policy Guidance Report |
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57 | (14) |
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58 | (7) |
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Response from Congress (Legislative Action) |
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59 | (1) |
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Response from the Department of Health and Human Services |
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60 | (1) |
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Response from the Centers for Disease Control and Prevention |
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60 | (1) |
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Response from the Food and Drug Administration |
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61 | (1) |
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Response from the National Institutes of Health |
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62 | (2) |
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Response from the Secretary's Advisory Committee on Genetic Testing |
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64 | (1) |
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Response from State Government (Oregon) |
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65 | (1) |
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Response from Professional Societies, Organizations, and Foundations |
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65 | (2) |
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Response from the Federation of American Societies for Experimental Biology |
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66 | (1) |
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Response from Intermountain Health Care |
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66 | (1) |
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Response from The Online Ethics Center for Engineering and Science |
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67 | (1) |
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67 | (4) |
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Response from the United Kingdom |
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68 | (1) |
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Response from the Organisation for Economic Co-operation and Development |
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68 | (1) |
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69 | (1) |
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70 | (1) |
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Response to the Ethical Issues in Human Stem Cell Research Report |
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71 | (32) |
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74 | (10) |
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Response from the President of the United States |
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75 | (2) |
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77 | (4) |
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Response from the Department of Health and Human Services |
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81 | (1) |
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Response from the National Institutes of Health |
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82 | (2) |
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Response from Professional Societies, Organizations, and Foundations |
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84 | (10) |
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Response from the American Association for the Advancement of Science and Institute for Civil Society |
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85 | (2) |
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Response from the American Council on Education, Association of American Universities, and National Association of State Universities and Land-Grant Colleges |
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87 | (1) |
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Response from the American Medical Association |
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88 | (1) |
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Response from the American Society for Cell Biology |
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89 | (1) |
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Response from the Association of American Medical Colleges |
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89 | (1) |
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Response from the Biotechnology Industry Organization |
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90 | (1) |
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Response from the Center for Bioethics and Human Dignity |
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91 | (1) |
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Response from the Endocrine Society |
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91 | (1) |
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Response from the Joint Steering Committee for Public Policy |
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92 | (1) |
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Response from the National Academies |
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92 | (1) |
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Response from the Society for Developmental Biology |
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93 | (1) |
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Response from the United States Conference of Catholic Bishops |
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93 | (1) |
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94 | (9) |
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Response from the United Kingdom |
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94 | (3) |
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Response from the European Parliament |
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97 | (1) |
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Response from the European Group on Ethics in Science and New Technologies to the European Commission |
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97 | (1) |
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Response from the International Bioethics Committee of the United Nations Educational, Scientific and Cultural Organization |
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98 | (1) |
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99 | (1) |
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100 | (1) |
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101 | (1) |
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101 | (2) |
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Response to the Ethical and Policy Issues in International Research: Clinical Trials in Developing Countries Report |
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103 | (10) |
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104 | (2) |
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Response from the National Institutes of Health |
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105 | (1) |
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Response from Professional Societies, Organizations, and Foundations |
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106 | (3) |
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Response from the American Association for the Advancement of Science |
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106 | (1) |
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Response from the American Medical Association |
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107 | (1) |
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Response from Public Citizen |
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108 | (1) |
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109 | (4) |
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Response from the United Kingdom |
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110 | (1) |
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Response from the Global Forum for Bioethics in Research |
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110 | (3) |
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Response to the Ethical and Policy Issues in Research Involving Human Participants Report |
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113 | (16) |
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116 | (8) |
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117 | (3) |
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Response from the Department of Health and Human Services |
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120 | (1) |
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Response from the Centers for Disease Control and Prevention |
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121 | (1) |
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Response from the National Institutes of Health |
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122 | (1) |
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Response from the Veterans Health Administration |
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123 | (1) |
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Response from Professional Societies, Organizations, and Foundations |
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124 | (2) |
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Response from the Alliance for Human Research Protection |
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124 | (1) |
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Response from the American Association for the Advancement of Science |
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125 | (1) |
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Response from the American Medical Association |
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126 | (1) |
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Response from the Association of American Medical Colleges |
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126 | (1) |
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126 | (3) |
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127 | (2) |
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129 | (10) |
Appendix Data Collection Methods |
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139 | (6) |
Bibliography |
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145 | |